Resources

You can find links to more information, our partners, and resources below:

Featured Partners

A Kid Again

Spina Bifida Assocation

Spina Bifida Research Center

Carousel House - Philadelphia Department of Recreation

Katie's Komets Sports Teams

Variety Club - Philadelphia

Assistance for Individuals, Parents and Families

CHC Connect Program Overview (PDF)

Continuum Connect (CHC) Spina Bifida Program (PDF)

CHC Clinicians (PDF)

CHC Insurance List (PDF)

Disaboom - Scholarship List (PDF)

PACER Center - Champions for Children with Disabilities

Office of Special Education and Rehabilitative Services

DisabilityInfo.gov

iVillage - Parenting

My Bleeding Ink Blog

Lindsay's Bracelets

Fetal Surgery

Children's Hospital of Philadelphia Fetal Surgery Portal

Sofia-Rose’s Spina Bifida Fetal Surgery Story

Adaptive Sports Programs

ALL Children's Hospital of Philadelphia (CHOP) Adaptive Sports Programs

Baseball - Camden County NJ Miracle League

Basketball - Philly's Katie's Komets

Cheerleading

Fitness Program - FitMe at VanDuraFit

Horseback Riding

Sled Hockey

Soccer

Swimming in Marlton, NJ

Swimming in West Chester, PA

Wheelchair Sports - Racing, Rugby, Tennis

Yoga

For Health Care Professionals

Guidelines for the Care of People with Spina Bifida

Accessibility Information

Mobility Works

Tech Owl Lending Library

Children's Hospital of Philadelphia (CHOP) Adaptive Sports Programs

Pennsylvania Center for Adaptive Sports

Genetics Links

National Institute of Health

National Spina Bifida Association (PDF)

Spina Bifida Resource Center

Genetics of Human Neural Tube Defects

Latex Alergy Information

Latex Allergy Info

Mayo Clinic Latex Allergy Information

NOTE: These links are provided as a courtesy to our visitors. SBADV is not responsible for the content found on any external websites. Please contact us to request any additions or corrections to the following links.