Upcoming Events

In October of 2022 and in recognition of Spina Bifida Awareness Month, the network of Spina Bifida organizations across the country launched two book clubs: One for adults living with spina bifida and one for family/caregivers of someone living with spina bifida.

Book clubs take place via Zoom every other month on Thursday evenings at 4:30pm PST/7:30pm EST

When a child is diagnosed with a life-threatening condition, we know it impacts the entire family. If your family has been impacted by a difficult medical journey, you are not alone! A Kid Again provides year-round, cost-free events (we call Adventures) to help bring smiles to the faces of kids, their siblings, and their parents.

Please join us on Saturday, Nov. 5, 2022, for Spina Bifida Education Day, a special event for parents and caregivers hosted by the Spina Bifida Program and our specialty colleagues. Attendees will have the opportunity to learn about various topics specific to spina bifida, network with other parents and caregivers, and ask the clinical team questions.

Lunch will be provided.

This October for Spina Bifida Awareness Month, the network of Spina Bifida organizations across the country are launching two book clubs: One for adults living with spina bifida and one for family/caregivers of someone living with spina bifida.

Book clubs will take place via Zoom every other month on Thursday evenings at 4:30pm PST/7:30pm EST

When a child is diagnosed with a life-threatening condition, we know it impacts the entire family. If your family has been impacted by a difficult medical journey, you are not alone! A Kid Again provides year-round, cost-free events (we call Adventures) to help bring smiles to the faces of kids, their siblings, and their parents.

Teal on the Hill is an annual event that brings hundreds of members of the Spina Bifida community together from across the U.S. to advocate for issues such as continued funding for the National Spina Bifida Program at the Centers for Disease Control & Prevention (CDC); disability rights; and affordable and accessible health care, medical supplies, and technologies.

A time to celebrate the hundreds of thousands of people living with Spina Bifida. Every October, we share community stories that challenge us to raise more awareness and support for those living with Spina Bifida. As a community, we can do this by raising awareness about Spina Bifida either in our own circles or to the larger networks of which we are apart. It’s also a great time for us to challenge ourselves to find new ways to get involved in raising awareness and advocacy activities.