Past Events

The World Spina Bifida is sponsored by the International Federation for Spina Bifida and Hydrocephalus and supported by the European Parliament.

Come join us on Saturday, October 22, 2022 at 9:00 a.m. as we support the Spina Bifida Association of Delaware Valley. The Spina Bifida 5K Run, Walk, or Roll is produced by the Philadelphia Parks and Recreation Department and benefits the Spina Bifida Association of Delaware Valley.

The race starts and ends at Lloyd Hall on Boathouse Row.

Online registration closes at 11:59 p.m. EDT on Thursday, October 20, 2022. Walk-up registration will begin at 7:30 a.m. on October 22nd and will close at 8:45 a.m.

Walk-N-Roll for Spina Bifida is a family-friendly event that highlights a non-competitive one-mile walk/roll, educational resource fair, games and activities, and amazing opportunities to connect. 2021 was a special year for this decade-old program, as our events went virtual. Thank you to everyone who made Walk-N-Roll 2021 fun and successful! This year 2022 the Walk n Roll will be Virtual. It is a great kick off for our Spina Bifida 5K.

Please spread the word and encourage individuals and families in your network to register. You can walk/roll on your own or organize your own small local group according to COVID guidelines. It would be incredibly helpful for as many of you are able to have your own team and be actively engaged with the social media aspect of the event.

This event is Free... Fundraise for SBADV programs by seeking donations from family and friends and recruit your community to join your team! Fundraising will be open from August-October. Then bring your team together to walk and roll for spina bifida awareness at home, in your neighborhood, local park, track, walking trail, or any other place that gets you in the spirit!

Thank you again for your support, and many thanks to our participants, and sponsors who helped make last year’s first virtual Walk-N-Roll one to remember!

A time to celebrate the hundreds of thousands of people living with Spina Bifida. Every October, we share community stories that challenge us to raise more awareness and support for those living with Spina Bifida. As a community, we can do this by raising awareness about Spina Bifida either in our own circles or to the larger networks of which we are apart. It’s also a great time for us to challenge ourselves to find new ways to get involved in raising awareness and advocacy activities.

September is Hydrocephalus Awareness Month, when individuals and families across the country come together to educate the public about hydrocephalus, how it impacts children and adults, and the importance of finding a cure and more treatment options.

Teal on the Hill is an annual event that brings hundreds of members of the Spina Bifida community together from across the U.S. to advocate for issues such as continued funding for the National Spina Bifida Program at the Centers for Disease Control & Prevention (CDC); disability rights; and affordable and accessible health care, medical supplies, and technologies.

When a child is diagnosed with a life-threatening condition, we know it impacts the entire family. If your family has been impacted by a difficult medical journey, you are not alone! A Kid Again provides year-round, cost-free events (we call Adventures) to help bring smiles to the faces of kids, their siblings, and their parents.

A Kid Again Greater Philadelphia brings Hope, Happiness, and Healing to families raising kids with life-threatening conditions in PA, NJ, DE, and NY. Our Adventures are a time out from the daily obstacles your family might face - a chance to make memories together as a family all year long, year after year. We want to give you an opportunity to come see what an Adventure is like! Join our enrolled families for our Capes and Crowns Fall Fun Fest Adventure on November 7th at Johnson's Locust Hall Farm in Jobstown, NJ from 11:00 a.m. to 3:00 p.m.! We will have hayrides, pick apples and pumpkins, and have snacks and crafts...and as always, it's free!

Support SBADV and Blanchard Family Wines on November 5th, 8pm EST, as we support our mission to build a better and brighter future for all those impacted by Spina Bifida. Blanchard Family Wines will ship or deliver you 4 x 375ml bottles of our award winning Sonoma County wine and then owners James and Mark Blanchard will lead you on a virtual wine tasting experience. The Blanchard brothers have hosted over 200 virtual wine tastings and have create a fun, interactive, and educational experience.
*$50 of each package will be donated to the Spina Bifida Association chapter you choose.
*Please Make sure you SELECT SPINA BIFIDA DELAWARE VALLEY in the drop down
*Registration deadline is October 25th.
*Wines will be delivered and Zoom link emailed 1-2 days prior to the event.

The World Spina Bifida is sponsored by the International Federation for Spina Bifida and Hydrocephalus and supported by the European Parliament.

Spina Bifida 5k is the second largest annual fundraiser for our local community programs, education, and support. This family-friendly event highlights a competitive 5K timed event, educational resource fair, raffles, activities, and amazing opportunities to connect! SBADV will honor The Champion of the Community each year during this event! Help spread awareness.

The race starts and ends at Lloyd Hall, One Boathouse Row. Online registration closes at 11:59 p.m. EDT on Thursday, October 14, 2021. Walk-up registration will begin at 7:30 a.m. on October 16th and will close at 8:45 a.m.

A time to celebrate the hundreds of thousands of people living with Spina Bifida. Every October, we share community stories that challenge us to raise more awareness and support for those living with Spina Bifida. As a community, we can do this by raising awareness about Spina Bifida either in our own circles or to the larger networks of which we are apart. It’s also a great time for us to challenge ourselves to find new ways to get involved in raising awareness and advocacy activities.

Participate in Spina Bifida Awareness month. Fundraise at work, school or throughout your community by selling paper ghosts for a donation of $1. No worries, if you do not wish to sell them; you can still help out by purchasing one of your own. The Spina Bifida Association of Delaware Valley will send you all the materials you will need. Your donors can write their names on their adopted ghosts, and we will collect the ghosts and donations at the end of the campaign. All of the adopted ghosts will be placed on the Adopt–a–Ghost Banner and displayed on our website.

September is Hydrocephalus Awareness Month, when individuals and families across the country come together to educate the public about hydrocephalus, how it impacts children and adults, and the importance of finding a cure and more treatment options.

The Olympics were exciting but we’re ready for the Paralympics! The 2021 Summer Paralympics in Tokyo, Japan will begin on August 24, 2021. As in years past, this event isn’t focused on disability, it’s focused on the many athletic accomplishments and achievements of athletes from around the world. This year, we thought it would be fun to come together and cheer on the athletes from the Spina Bifida community who will be representing Team USA!

This meeting is an opportunity for health care professionals serving the Spina Bifida community to network, partner, and collaborate. Attendees learn about the SBA’s Collaborative Care Network, the new Guidelines for the Care of People with Spina Bifida, the National Spina Bifida Patient Registry, the latest research, and much more.

“I’m excited for Spina Bifida health care professionals, leaders from Spina Bifida chapters, and scientists from the Centers for Disease Control and Prevention (CDC) and the health care community, to come together with the Spina Bifida Association to network and to learn about the National Spina Bifida Patient Registry and associated research, and processes of care that are important to the care of people living with Spina Bifida,” said, Judy Thibadeau RN, MN, SBA’s National Director of Research and Services. “The attendees at this meeting represent those who compose the Spina Bifida Collaborative Care Network, a network working together to improve the care and outcomes of people with Spina Bifida.”

Walk 'n Roll for Spina Bifida is one of SBADV’s largest annual fundraisers for our local community programs, education, and support. This family-friendly event highlights a non-competitive one-mile walk/roll, educational resource fair, games and activities, and amazing opportunities to connect!

Teal on the Hill is an annual event that brings hundreds of members of the Spina Bifida community together from across the U.S. to advocate for issues such as continued funding for the National Spina Bifida Program at the Centers for Disease Control & Prevention (CDC); disability rights; and affordable and accessible health care, medical supplies, and technologies.

In 2020, more than 350 people from 44 states and the District of Columbia sent more than 2,000 emails to Members of Congress. We’re delighted to report that on December 28, 2020, the Department of Labor, Health, and Human Services signed legislation to include an additional $1 million for the National Spina Bifida Program at the CDC, bringing the total budget to $7 million. That’s the first increase the Program has received in seven years!

When a child is diagnosed with a life-threatening condition, we know it impacts the entire family. If your family has been impacted by a difficult medical journey, you are not alone! A Kid Again provides year-round, cost-free events (we call Adventures) to help bring smiles to the faces of kids, their siblings, and their parents.

The World Spina Bifida is sponsored by the International Federation for Spina Bifida and Hydrocephalus and supported by the European Parliament.

The Spina Bifida 5k Run, Walk, or Roll Walk-N-Roll an annual family-friendly event to support and celebrate the successes of children and adults living with Spina Bifida. It is held to raise awareness of Spina Bifida and to raise funds for the Spina Bifida Association of Delaware Valley to provide programming and financial aid assistance for uncovered expenses related to the care, treatment, and related costs of daily living for those affected at birth and their families. It was held virtually in 2020 due to the COVID-19 pandemic.

A time to celebrate the hundreds of thousands of people living with Spina Bifida. Every October, we share community stories that challenge us to raise more awareness and support for those living with Spina Bifida. As a community, we can do this by raising awareness about Spina Bifida either in our own circles or to the larger networks of which we are apart. It’s also a great time for us to challenge ourselves to find new ways to get involved in raising awareness and advocacy activities.

September is Hydrocephalus Awareness Month, when individuals and families across the country come together to educate the public about hydrocephalus, how it impacts children and adults, and the importance of finding a cure and more treatment options.

Walk-N-Roll for Spina Bifida is an annual family-friendly, non-competitive, one-mile walk event to support and celebrate the successes of children and adults living with Spina Bifida. It is held to raise awareness of Spina Bifida and to raise funds for the Spina Bifida Association of Delaware Valley to provide programming and financial aid assistance for uncovered expenses related to the care, treatment, and related costs of daily living for those affected at birth and their families. It was cancelled in 2020 due to the COVID-19 pandemic.

This year's holiday party featured a mini bazaar, music, delicious food from Galdo's and a visit from Santa!

The World Spina Bifida is sponsored by the International Federation for Spina Bifida and Hydrocephalus and supported by the European Parliament.

The Spina Bifida 5k Run, Walk, or Roll Walk-N-Roll an annual family-friendly event to support and celebrate the successes of children and adults living with Spina Bifida. It is held to raise awareness of Spina Bifida and to raise funds for the Spina Bifida Association of Delaware Valley to provide programming and financial aid assistance for uncovered expenses related to the care, treatment, and related costs of daily living for those affected at birth and their families.

A time to celebrate the hundreds of thousands of people living with Spina Bifida. Every October, we share community stories that challenge us to raise more awareness and support for those living with Spina Bifida. As a community, we can do this by raising awareness about Spina Bifida either in our own circles or to the larger networks of which we are apart. It’s also a great time for us to challenge ourselves to find new ways to get involved in raising awareness and advocacy activities.

September is Hydrocephalus Awareness Month, when individuals and families across the country come together to educate the public about hydrocephalus, how it impacts children and adults, and the importance of finding a cure and more treatment options.

Members and families of the SBADV attended the Philadelphia Phillies vs. Chicago Cubs baseball game at Citizens Bank Park. We enjoyed building are community and watching the Phillies beat the cubs 4-2!

Walk-N-Roll for Spina Bifida is an annual family-friendly, non-competitive, one-mile walk event to support and celebrate the successes of children and adults living with Spina Bifida. It is held to raise awareness of Spina Bifida and to raise funds for the Spina Bifida Association of Delaware Valley to provide programming and financial aid assistance for uncovered expenses related to the care, treatment, and related costs of daily living for those affected at birth and their families.

The World Spina Bifida is sponsored by the International Federation for Spina Bifida and Hydrocephalus and supported by the European Parliament.

The Spina Bifida 5k Run, Walk, or Roll Walk-N-Roll an annual family-friendly event to support and celebrate the successes of children and adults living with Spina Bifida. It is held to raise awareness of Spina Bifida and to raise funds for the Spina Bifida Association of Delaware Valley to provide programming and financial aid assistance for uncovered expenses related to the care, treatment, and related costs of daily living for those affected at birth and their families.

A time to celebrate the hundreds of thousands of people living with Spina Bifida. Every October, we share community stories that challenge us to raise more awareness and support for those living with Spina Bifida. As a community, we can do this by raising awareness about Spina Bifida either in our own circles or to the larger networks of which we are apart. It’s also a great time for us to challenge ourselves to find new ways to get involved in raising awareness and advocacy activities.

September is Hydrocephalus Awareness Month, when individuals and families across the country come together to educate the public about hydrocephalus, how it impacts children and adults, and the importance of finding a cure and more treatment options.

Walk-N-Roll for Spina Bifida is an annual family-friendly, non-competitive, one-mile walk event to support and celebrate the successes of children and adults living with Spina Bifida. It is held to raise awareness of Spina Bifida and to raise funds for the Spina Bifida Association of Delaware Valley to provide programming and financial aid assistance for uncovered expenses related to the care, treatment, and related costs of daily living for those affected at birth and their families.

The World Spina Bifida is sponsored by the International Federation for Spina Bifida and Hydrocephalus and supported by the European Parliament.

The Spina Bifida 5k Run, Walk, or Roll Walk-N-Roll an annual family-friendly event to support and celebrate the successes of children and adults living with Spina Bifida. It is held to raise awareness of Spina Bifida and to raise funds for the Spina Bifida Association of Delaware Valley to provide programming and financial aid assistance for uncovered expenses related to the care, treatment, and related costs of daily living for those affected at birth and their families.

A time to celebrate the hundreds of thousands of people living with Spina Bifida. Every October, we share community stories that challenge us to raise more awareness and support for those living with Spina Bifida. As a community, we can do this by raising awareness about Spina Bifida either in our own circles or to the larger networks of which we are apart. It’s also a great time for us to challenge ourselves to find new ways to get involved in raising awareness and advocacy activities.

September is Hydrocephalus Awareness Month, when individuals and families across the country come together to educate the public about hydrocephalus, how it impacts children and adults, and the importance of finding a cure and more treatment options.